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"First I want to thank everyone for the well wishes for my son’s speedy recovery!
He is in PICU on a sedation drip, we we’re told to go get some rest…. I was like what is rest? But anyways… the operation though considered a major surgery went well and is relatively non life threatening… he had work done on his mid face and upper jaw to correct a congenital defect from his Pfieffer’s Syndrome… He has had I think 35 surgeries in 15 years and I thought I was used to this, but the doc’s threw me a curve ball with the distracter devices used in this operation, I was unnerved and it made my stomach queasy, just as I got used to the site of this medieval looking contraption I thought about my son’s reaction to this and got resickened.
Holding him last night while he broke down about the fairness of his having to go through this tugged at my black little heart’s strings. In 15 years he never once bitched, whined or complained about going through the surgeries, (so you pussies that whine over bull shit should feel rotten) until last night, he was due eh?
He was upset about his hair, not because he wants to look cool, but because growing it over his face was his way of hiding certain appearance issues he has had… his was a genuine fear of ridicule by people, it broke my heart in tiny pieces to not just cut his hair but to drive him to the hospital this morning.
In the morning I will drive back to the hospital; and sit, once they pull the tube from him and he awakens I will do what I can to soothe and support him as he learns the nature of the head gear and how it appears. I will comfort him as best I can…
I hope any and all family and friends understand if he declines visitors, with the exception of grand parents, I will not only honor that request I WILL ENFORCE IT!
Ya’ll be good, I got some sleep to catch up on!"
That was his reply to you guys and an update from him.
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